Adults (of any gender) 18 years of age or older who self-identify as African American/Black or Non-Hispanic White.
Individuals suspected of having pancreatic cancer who are undergoing diagnosis and treatment at a participating site and have not received any treatment involving the pancreas.
WHAT IS INVOLVED IF I PARTICIPATE?
Your participation will not require extra visits to clinic. Any specimens and images you donate will be collected at the time of routinely scheduled procedures involved in your care.
The surveys can be completed at a location of your choice using a computer, tablet or mobile device. Paper versions of surveys are also available upon request.
WHAT ABOUT MY PRIVACY?
Data collected will only be used for research. Results may be published in a scientific journal, but your identity will not be published.
WHAT ARE THE COSTS OF PARTICIPATION?
There are no added costs to you or your insurance company for this research. You or your insurance company will be responsible for all the usual exams and medicines used for diagnosis and/or treatment.
Your participation is voluntary and will not jeopardize present or future medical care or treatment if you stop at any time.
WILL I RECEIVE COMPENSATION?
A gift card will be sent to you upon completion of study tasks.
WHAT ARE THE BENEFITS OF PARTICIPATION?
The information and biospecimens you provide may help to understand the factors that contribute to the unequal pancreatic cancer burden among certain racial and ethnic groups.
Your participation may also help in the development and discovery of new drugs and treatments for pancreatic cancer.
WILL I KNOW THE RESULTS OF THIS IMPORTANT RESEARCH?
If we learn important information that may affect your care as a result of this study, we may contact you or a person whom you designate to discuss optional clinical tests or studies.
We also plan to update you on new developments through a study newsletter.